Chances are, if you have a child with Shwachman-Diamond Syndrome, you've considered hosting a bone marrow donor drive. I have just published an article about how our family went about planning and hosting a bone marrow donor drive. You can read it at the following link: How to Host a Bone Marrow Donor Drive
Of course, if you would like to host a bone marrow donor drive and have any questions, please feel free to contact me. You can access my email address from the profile link on this page.