New Booklet Available

Shwachman-Diamond America is pleased to announce that we have a new booklet available. The title is Management of the Hematologic Abnormalities of Shwachman-Diamond Syndrome by Richard Harris, M.D. This booklet is excellent for parents, pediatricians and specialists. If you would like a copy (or copies) of the booklet sent to you, please send your mailing address to shwachmandiamondamerica@embarqmail.com These booklets are FREE to anyone who requests them. Visit the webstie above to request your free booklet.

The booklet includes sections on the following topics:

Description
History
Diagnosis
Management of Neutropenia
Management of Fevers in SDS patients
Antibiotic coverage prior to Dental Work or Surgical Procedures
Management of other Cytopenias
Management of Anemia during Surgical Procedures
Management of MDS
Management of Leukemia
Bone Marrow Transplantation for SDS
And also includes the following:
K-M Survival Plots
Important Contacts
References
Glossary
All of us at Shwachman-Diamond America would like to take this opportunity to thank Dr. Harris for all of his hard work and dedication to this project. Thank you, Dr. Harris, from the bottom of our hearts! Your dedication to all of our SDS and SDS-like children is appreciated more than you will ever know.


For information on Shwachman-Diamond Syndrome check out Shwachman-Diamond America

Traveling to Cincinnati Children's Hospital

Here is an article with tips on traveling to Cincinnati Children's Hospital:

Traveling To Cincinnati Children's

Centers with a Bone Marrow Failure Clinic or GI clinic with experience in SDS

Ø Cincinnati Children’s Hospital
Contact: Richard Harris, MD, richard.harris@cchmc.org , (513) 636- 3570

Ø Hospital for Sick Children, Toronto
Contact Peter Durie, MD, peter.durie@sickkids.ca, (416) 813-6185

Ø Children’s Hospital-Seattle, University of Washington, Seattle, WA Contact: Akiko Shimamura, MD, shima2@u.washington.edu, (206) 685-5282

Ø Schneider Children’s Hospital, North Shore of Long Island, NY Contact: Jeff Lipton, MD, jlipton@lij.edu, (718) 470-3460

Ø National Institutes of Health (NIH), Division of Cancer Epidemiology and Genetics (Bone Marrow Failure Program)
Contact: Blanche Alter, MD, alterb@mail.nih.gov, (301) 402-9731