Recommendations for dental problems with SDS by Dr. Michael Glogauer:
1. Visit your dentist at least every 6 months and more frequently (every 3 months) if oral problems have developed.
2. Discuss home topical fluoride treatments to prevent dental decay.
3. Monitor gums and oral tissues for inflammation and infections (red puffy tissue that bleeds easily) which indicate early periodontal diseases associated with neutropenia.
4. Provide your dentist with Dr. Glogauer’s research paper so that s/he understands the oral problems associated with SDS. (I have the full-text PDF of the paper, if you need it)
For information on Shwachman-Diamond Syndrome check out Shwachman-Diamond America
