If you have a friend or family member with Shwachman-Diamond Syndrome or have SDS yourself, please feel free to join our email support group. It is an amazing group of over 230 people-- adults with SDS, parents of SDS children and even aunts and caretakers. We have people from the U.S., Canada, Autralia, Belgium, The Netherlands, France, England & the U.K, Germany, Mexico, Spain, Africa, Israel and all over the world involved.
It is a great place to connect with others and find support. To join, send an email to: firstname.lastname@example.org