Minimizing Infusion Anxiety

I.G. Living also has an article on minimizing infusion anxiety this month. They have it on their website. The Employment Law article is not on the site….

Thought I’d share this article, too. Minimizing Infusion Anxiety

http://www.igliving.com/web_files/A-M09_Anxiety.pdf






For more information on Shwachman-Diamond Syndrome, please see Shwachman-Diamond America

Help Books

Books to help kids
Our youngest has a workbook to help him with his worries. We found others by the same author. We ordered one of them, but I wanted to post them all -- it might help someone.
What to Do When Your Temper Flares: A Kid's Guide to Overcoming Problems with Anger by Dawn Huebner, Bonnie Matthews (Illustrator)(Paperback)
What to Do When You Grumble Too Much: A Kid's Guide to Overcoming Negativity(Paperback)
What to Do When you Dread Your Bed: A Kid's Guide to Overcoming Problems with SleepBoy and a Bear: The Children's Relaxation Book
What to Do When Your Brain Gets Stuck: A Kid's Guide to Overcoming Ocd by Dawn Huebner, Bonnie Matthews (Illustrator)


For information on Shwachman-Diamond Syndrome check out Shwachman-Diamond America

Depression-Free Naturally:7 Weeks to Eliminating Anxiety, Despair, Fatigue and Anger from Your Life

A friend told me about this book. She got it to help her daughter with Anxiety. You can read an excerpt here: Depression-Free Naturally 7 Weeks to Eliminating Anxiety, Despair, Fatigue and Anger from Your Life

Worried Kids - Anxiety Disorder -Great Book

I just got this book last week and it seems like a great book. It is titled Worried No More: Help and Hope for Anxious Children by Aureen Pinto Wagner

It says it is for Parents, school and healthcare professionals.

It includes highly effective practical strategies, specific how to steps and really is clear and easy to understand like the cover says!

The chapters include case studies of a few children (The many faces of fear), normal fears and anxieties, when does anxiety become a problem…… then goes into Anxiety disorders and problems. Such as Separation anxiety disorder, generalized anxiety disorder, specific phobias, social anxiety, OCD, PANDAS, PTSD, Panic disorder, school phobia. It also has a chapter that tells you how to tell the difference between the anxiety disorders….

Goes into disorders associated with anxiety (Depression, Tourette’s, ADHD, Autism, Asperger’s, trichotillomania, body dysmorphic disorder,eating disorders, etc)

Also has sections on:

warning signs and signals
what causes anxiety disorders
cognitive behavioral therapy for anxiety
when should medication be considered
safety of meds
what parents can do to help
what schools can do to help
an action plan at school
challenges on the road to recovery (meltdowns, etc)
strategies at a glance


AND…. It even goes into writing and reading difficulties associated with anxiety along with inability to complete assignments, and a whole lot more.



Includes forms and tools—

Helping Children Cope with Medical Procedures

I wrote two articles on Helping Children cope with Medical procedures-- the techniques have been a tremendous help in helping our boys.

Helping Children Cope with Medical Procedures: Using Social Stories

Using Humor and Fun to help Children Cope with Medical Procedures

I thought these might be helpful to some families.

Social Stories- help for Anxiety

When my youngest was having problems and fears about getting blood in his SCIG line, a friend told me about social stories. We used this technique with great succes (along with the worry book I mentioned before). We would explain to Joseph that if he got blood in his line, we would take care of it and explain what would happen. This eased his fears. You can use social stories for helping your children cope with the many medical procedures and tests, too.

Here are a few links:

Social Stories, their use and Start

Social Stories

Talking to a Child with Bone Marrow Disease

The Aplastic Anemia & MDS International Foundation, Inc has several great resources for families that have children with bone marrow diseases, such as Shwachman-Diamond Syndrome. Below is a summary of one booklet SDA found helpful for our own families. To order a free copy of this book, please visit the AA& MDS Foundation website.

Talking to a Child with Bone Marrow Disease – This is an excellent book created to be read aloud to a child of any age. It was written to encourage children with bone marrow diseases to ask questions and express their feelings. The illustrations are wonderful and the writing is excellent. It not only addresses having a bone marrow disease, but brings up topics that can help children learn positive coping skills in dealing with their disease. Topics include: What can I do when I am feeling bad?, What if I don’t want to talk? , Why do I get sick?, Why do I have to go to the hospital and Why do I need Medicine. It also touches on such topics as: Why is my family upset? And What do I tell my friends? There is a thoughtful section for children to fill out questions (fill in the blank) such as, I’m sad about____________, I need to speak up when __________________ and I love _______________ . The back part of the book includes a blank journal where the child can write about his or her experiences with bone marrow disease.

Helping a Child Cope: Worry and Anxiety Books

The "What to do When You Worry too Much A kid's guide to overcoming anxiety" by Dawn Huebner, PhD is excellent for kids! It is a workbook for kids and they can draw pictures in certain places.

This is definitely something that helped Joseph. The other one I have, "What to do When You're Scared & Worried" by James J Crist PhD is geared toward (my opinion) older children . It looks like a great book, too! It has chapters for OCD and even one for Post-Traumatic Stress Disorder.

In the second book there are also chapters on Separation anxiety, Generalized Anxiety disorder, Panic Attacks and a chapter on what it is like to go to counseling. Chapters on coping skills to use at home and school...and lots more.

The first book is definitely geared toward the younger kids with the bigger text and places to color pictures.

Gotta put a plug in for iGive.com......If you order the books on-line through iGive.com at Barnes and Noble, SDA will get a % of the sale http://www.igive.com

Helping Children with Anxiety: Social Stories

Using social stories can help a child deal with having chronic illness, frequent hospitalizations and procedures, and anxiety related to frequent doctor visits.


Social Stories, their use and start


An Introduction to Social Stories